This is probably the most difficult post I’ve ever had to write. But I feel like if I don’t let this out – it will just continue to bottle up inside me. So, please excuse me while I vent and pour my heart out over your computer screen.
Yesterday we went in for a routine anatomy ultrasound at the hospital. The ultrasound tech zoomed in so we could see our little ones toes, hands, and body. I laid there holding Williams hand and we both watched our little guy wiggle on the screen. After the ultrasound was done the tech told us to wait there and that she was going to grab the doctor.
A woman entered the room and said she was going to double check some things – and picked up the instrument and began scanning. She asked me if I had the chromosome screening and I told her no. She continued to scan and I blurted out..
Is there something wrong?
She looked over and told me that yes, they saw some abnormalities. Our baby had one clubbed foot and two large cysts in his brain. Which is a sign of Trisomy 18. She then explained our options for testing and said that if the baby was born with Trisomy 18 we would have the option to terminate the pregnancy. And because I was 21 weeks along – and legally this can only happen until 23 or 24 weeks – we needed to move fast.
I remember just crying on that table, squeezing Williams hand to pieces. I remember William crying.
She took us into her office and pulled out a giant book with pictures and diagrams and information. She explained what Trisomy 18 was and what the outcome would be.
She said 50% of the babies with this are born stillborn. And if somehow he makes it through birth – his life expectancy would only be one year. She said he would be severely mentally disabled and have no quality of life. Most babies only last a few days after birth.
After we spoke with her, we confirmed that we wanted to have the testing procedures done. And then when I got up to change into the gown a strange sense of calm swept over me. I kept thinking I can do this – it’s going to be okay.
I changed into the gown and went into the ultrasound room where they preformed an Amniocentesis. I couldn’t watch them do it – I just had my head turned and looked at William the whole time. I felt as the needle poked through my stomach and was pushed deeper to get to the amniotic fluid. It all seemed to happen fast – and we were out of the room in 10 minutes.
I put a band-aid on my stomach, got dressed, and we left.
We will know tomorrow if our baby has the disorder. She said there is a small chance that he doesn’t have this – and may have something else along with his clubbed foot. So that is what we are hoping for.
I would appreciate any prayers you can offer. I know how strong and comforting the power of prayer can be – and we need all of the love we can get.
Kendall, I am so so sorry you are going through this, but I am praying for you that this is the “something else” the doctor cited as possible. ((Hugs from a Nuby “friend”.))
Kendall, I’m praying for you. I can’t even imagine what you’re going through. Daniel doesn’t talk about this, but he was born with clubbed feet and his parents were told he would never walk a day in his life. When he was just a couple days old, by a miracle from God, a doctor offered to perform surgery on him free of cost and now my Daniel is a strong, healthy man who has no signs of weakness. He was declined from the Air National Guard for his “condition,” but appealed it and is now doing better than ever. He plays sports and loves life… no one would ever know… I am praying for a miracle for you!
oh Kendall – my heart is so heavy for you right now ๐ I can’t imagine what you’re going through right now, and I’m not even going to try. Please know that I’m praying so hard for your heart, and for you and your family!! I love you!!
My mama heart cries for you, Kendall. I pray for strength for Levi, you and William as you venture into this uncharted territory. Know that God is in ultimate control and Levi is completely wrapped in His capable hands.
I’m new here and found you through another blogger friend. My heart is breaking for your family. I wanted to let you know that I am lifting you, your family and your unborn baby up in prayers. God already has a plan!
Kendall, my heart is absolutely aching for what you are going through. I can’t even wrap my head around receiving this kind of news. I just wanted to let you know that you haven’t left my mind since reading this post, and I am sending up so many prayers for you, your family, and especially that sweet little boy.
Kendall, You and your family are in my prayers! I am sure they will put you in contact with a geneticist or genetic counselor but if not my roommate is a genetic counselor and I’m sure would be happy to answer any questions you may have. Praying!!!
Kendall, I am so disheartened to hear this. God tests us for many reasons that we can never explain and I know he will bring you & your family through this. You are in my prayers.
Kendall, we have shared experiences with our boys on our mommy journey and though I have no idea the uncertainty and heartache you must be feeling, know that I and many others are at your back praying for you, your family, and this precious baby whatever the outcome of this test. Love!
Praying for you. I’ve been in your shoes. Unfortunately our 2nd son had a fatal diagnosis and we chose to carry to term and honor his little life. He lived for two and a half hours- the best and worst of my life. I don’t regret carrying him for one second because we were blessed with that time with him. And he knew nothing but love!
I saw this post via a friend on twitter. I’ve never read your blog before. But I had to comment and let you know that you are not alone. There are many many mommies who have received similar news that something is in fact, wrong. I am one of those. I have walked in similar shoes. My daughter was diagnosed with Turner Syndrome and hydrops when I was 17 weeks pregnant with her. I want you to know that even though this road is not easy, in fact it is ridiculously hard and something that I HATE that you have to experience, you will come out the other side. I promise. I don’t know if you are a Christian, but the Lord is near to you and He will walk through this with you. Simply call out to Him. He has given you that little boy as a gift and his life is precious and meaningful. I would also beg you not to end his life. That may not be the politically correct thing to say right now, but from one mom to another, I ask you to please leave this in God’s hands. The Lord placed Levi in your womb and has been knitting him together ever since and He alone knows all the days ordained for that sweet baby boy.
Know that I am praying for you, for your husband and for your son. Obviously I am not alone in that and what an amazing community you have here! If you need anything at all, please ask. Seriously. I want to encourage you and weep with you and pray for you, if you need it. It’s the least I can do.
I just want to say that my sister found out when she was 24 weeks that my nephew would be born with Down Syndrome and they were given the same options and given a book that outlined everything that could be wrong with their baby. They chose to go forward with the pregnancy after confirming that there were no other birth defects that would make his life horrible. He was born and had heart surgery and now is an amazing 7 year old boy. Don’t give up hope and remember that you can handle whatever the results are.
Thank you for sharing this! We had such a similar experience! 90 minute anatomy scan ultra sound, 30 minutes of it spent on his feet. Have never felt more scared, especially since they tech wouldn’t tell us anything. She said we would have to wait to hear from our Dr. Went in again yesterday, and found it he does have club feet. But his brain and spine are fine, so they ruled out any other abnormalities. But now I’m wondering if I should talk to my doctor more about it, and if amniocentesis is appropriate to rule it out for sure. So happy to have found you! Will be reading all of your posts : )
I’m so sorry to hear this girl! I’m really praying & hoping everything works out for you & baby. Lifting you up in spirit <3
Stacey
Kendall, I will be praying for you, your baby, and your family.
So sorry you are going through this, I can’t imagine how hard the news must have been. Praying!
Praying for your family!
I hope everything works out okay for you and your baby.
My prayers are with you and your family. Prayers for strength, understanding, acceptance. And peace.
Praying dear friend!!!!!!!!!!
oh hunnie, i am sending you all the positive energy I can and hoping for the best for you.
I am so sorry. They are no words, but please know you and your family are in my prayers.
Praying for you and your baby–you are a strong, brave woman!
Praying! God will help you through this, no matter the outcome.
Prayers going up for you.
Definitely praying for you.
Kendall, I am so so sorry you are going through this, but I am praying for you that this is the “something else” the doctor cited as possible. ((Hugs from a Nuby “friend”.))
Kendall, I’m praying for you. I can’t even imagine what you’re going through. Daniel doesn’t talk about this, but he was born with clubbed feet and his parents were told he would never walk a day in his life. When he was just a couple days old, by a miracle from God, a doctor offered to perform surgery on him free of cost and now my Daniel is a strong, healthy man who has no signs of weakness. He was declined from the Air National Guard for his “condition,” but appealed it and is now doing better than ever. He plays sports and loves life… no one would ever know… I am praying for a miracle for you!
So sorry. You’re in my thoughts.
I am so sorry Kendall. Praying for the best outcome and that God would wrap His arms around you and comfort you with His peace. Much love.
oh Kendall – my heart is so heavy for you right now ๐ I can’t imagine what you’re going through right now, and I’m not even going to try. Please know that I’m praying so hard for your heart, and for you and your family!! I love you!!
Praying for you and your family
Praying for you and your family
My mama heart cries for you, Kendall. I pray for strength for Levi, you and William as you venture into this uncharted territory. Know that God is in ultimate control and Levi is completely wrapped in His capable hands.
Praying!
I’m new here and found you through another blogger friend. My heart is breaking for your family. I wanted to let you know that I am lifting you, your family and your unborn baby up in prayers. God already has a plan!
praying…
Kendall, my heart is absolutely aching for what you are going through. I can’t even wrap my head around receiving this kind of news. I just wanted to let you know that you haven’t left my mind since reading this post, and I am sending up so many prayers for you, your family, and especially that sweet little boy.
Breanna
Have you in my prayers!
Kendall, You and your family are in my prayers! I am sure they will put you in contact with a geneticist or genetic counselor but if not my roommate is a genetic counselor and I’m sure would be happy to answer any questions you may have. Praying!!!
I wish I could hug you. Praying for you <3
Praying for you & your family. God has a plan for you and your son- don’t give up hope!
Praying for you today sweet girl. Praying hard and lifting you up, praying you’ll be COVERED in the peace and comfort of God’s perfect love.
Praying for you all.
Kendall, I am so disheartened to hear this. God tests us for many reasons that we can never explain and I know he will bring you & your family through this. You are in my prayers.
Oh my gosh, I hope this isn’t so. I am praying for you and your family! xoxoxoxoxo
Keeping you and your family in my prayers.
Oh man, we had the same appointment yesterday. I can only imagine how you’re feeling, and will be praying for your family! Please keep us all posted!
Carly
http://www.lipglossandcrayons.com
Sweet Kendall. My heart aches for you and your family. Oh how I will be praying for you guys. I wish I could give you a hug right now.
You are absolutely in my prayers. I wish there was more we could do. God is looking out for you no matter what happens <3
I am so sorry, hunny. I will be praying for your family and the doctor’s wisdom. ๐
Oh sweet Kendall! You guys are in my prayers!!
You are in my prayers sweet girl! Both you and your family. *big hugs*
oh honey. i am so sorry ๐ I’ll be praying praying praying for you guys. There are a few pages I want you to look at. I think it will make you feel a tiny tiny bit better. A girl I know through some mutual friends has a baby girl who was born with Trisomy 18. She is thriving. Some friends photographed her birth here https://www.cincinnatibirthphotography.com/2012/04/a-beautiful-beginning-nora-roses-birthstory/. And her mom’s blog is here https://noraroseyusko.com.
Love you to pieces and let me know if there is anything I can do for you.
Kendall, we have shared experiences with our boys on our mommy journey and though I have no idea the uncertainty and heartache you must be feeling, know that I and many others are at your back praying for you, your family, and this precious baby whatever the outcome of this test. Love!
Praying sweet friend!!! Wish I could give you a tight hug!! Xoxo
Praying for you. I’ve been in your shoes. Unfortunately our 2nd son had a fatal diagnosis and we chose to carry to term and honor his little life. He lived for two and a half hours- the best and worst of my life. I don’t regret carrying him for one second because we were blessed with that time with him. And he knew nothing but love!
Praying they are wrong. Lifting you up in prayer.
Praying!
I saw this post via a friend on twitter. I’ve never read your blog before. But I had to comment and let you know that you are not alone. There are many many mommies who have received similar news that something is in fact, wrong. I am one of those. I have walked in similar shoes. My daughter was diagnosed with Turner Syndrome and hydrops when I was 17 weeks pregnant with her. I want you to know that even though this road is not easy, in fact it is ridiculously hard and something that I HATE that you have to experience, you will come out the other side. I promise. I don’t know if you are a Christian, but the Lord is near to you and He will walk through this with you. Simply call out to Him. He has given you that little boy as a gift and his life is precious and meaningful. I would also beg you not to end his life. That may not be the politically correct thing to say right now, but from one mom to another, I ask you to please leave this in God’s hands. The Lord placed Levi in your womb and has been knitting him together ever since and He alone knows all the days ordained for that sweet baby boy.
Know that I am praying for you, for your husband and for your son. Obviously I am not alone in that and what an amazing community you have here! If you need anything at all, please ask. Seriously. I want to encourage you and weep with you and pray for you, if you need it. It’s the least I can do.
PRAYING. PRAYING. PRAYING.
praying. praying praying and more praying.
Praying for you and your baby! Keep the faith!
We serve a BIG God!! Praying for all of you. Virtual hugs!!!
Keeping you in my thoughts!
Oh, sweetheart. I am so sorry to hear this. I am sending positive thoughts, vibes, and prayers your way. Stay strong, you will get through this!!
xoxo
Lifting you up, Kendall – wishing you good news soon!
It’s hard to know the words to say, but I remember seeing this video several years ago when a friend had the same diagnosis.
https://www.oprah.com/oprahshow/Remembering-Eliot-The-99-Balloons-Video
Praying for you.
I just want to say that my sister found out when she was 24 weeks that my nephew would be born with Down Syndrome and they were given the same options and given a book that outlined everything that could be wrong with their baby. They chose to go forward with the pregnancy after confirming that there were no other birth defects that would make his life horrible. He was born and had heart surgery and now is an amazing 7 year old boy. Don’t give up hope and remember that you can handle whatever the results are.
Oh my goodness, I hope it goes your way! I will keep you in my prayers!
xx
Kelly
Sparkles and Shoes
Thank you for sharing this! We had such a similar experience! 90 minute anatomy scan ultra sound, 30 minutes of it spent on his feet. Have never felt more scared, especially since they tech wouldn’t tell us anything. She said we would have to wait to hear from our Dr. Went in again yesterday, and found it he does have club feet. But his brain and spine are fine, so they ruled out any other abnormalities. But now I’m wondering if I should talk to my doctor more about it, and if amniocentesis is appropriate to rule it out for sure. So happy to have found you! Will be reading all of your posts : )